Two Steps Back

Today was a day of setbacks for both boys. Dr. B called and said that Kaden needed to remain on the c-pap for the rest of the day because he was just too worn out and was working too hard to breath. Braylon had to be taken off the regular cannula and placed on a high flow cannula because he kept having desats and bradys during the night, this was a huge surprise to us. He also said they both seemed very lethargic today, Kaden has days like this but this was very unlike Braylon. Because there were such big changes in the boys’ status they decided to run some lab work to check for infection and to check their caffeine levels. Both boys’ lab work came back normal. The doctor and nurses think they just got over stimulated and were very tired today. We let them rest most of the day today and both boys were showing improvements by their 8pm care time. The nurses kept encouraging us to hold them every care time yesterday, which we both thought might be too much but figured they would know what they could tolerate. We have decided to go back to the same old routine of Braylon getting held twice a day and Kaden getting held once a day until he can tolerate twice a day holdings. Hopefully the boys will regain their strength and be able to make progress.